I don't have but a couple seconds to post, but wanted to update you on what the new neurologist said to us yesterday. We liked him a lot and will be under his care fulltime now.
He validated our concerns will be scheduling tests that range from genetic to metabolic. He feels that the nystagmus is a new symptoms because it's bad enough to be seen by anyone that exams her eyes. I will be making an opthalmologist appoint ASAP. He also added dystharia in her speech to the list of symptoms. Jason mentioned something to me about 1.5 wks ago and I told him that he was just looking for symptoms. He describes it as Hannah having to concentrate more on how she says things to get the words out correctly.
All of this leads the neuro to feel that something is going on with her cerebellum. He concluded by saying that "we are in Atlanta and have a great medical community. Know that we will be here for you in whatever this turns out to be."
Jason and I are beside ourselves with worry. I have cried nearly all morning. I have having great difficulty coming to terms with why another of my children have to suffer.
Wednesday, March 25, 2009
Hannah Update
Posted by Candy at 10:14 AM
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6 comments:
Oh Candy, I wish I could give you a big hug. I'm glad you've found that new neurologist. He sounds very good and very supportive. I've added Hannah's name to the prayer list in a crochet group I belong to. Hannah is beautiful and very special, whatever the diagnosis turns out to be.
Big (((((hugs))))) for you and Jason.
SENDING LOVE AND PRAYERS FOR ALL.
Candy, I don't know really what to say beyond just that I'm thinking about you. I don't understand why things happen the way they do. Sometimes it just doesn't make sense. I'm sorry this is happening to your little girl.
Candy, I am so sorry about Hannah. I validate your sadness because I have struggled with the same question myself. We do not know why sad things happen to the innocent. You all will remain in my prayers. I am so glad that you found a neurologist that you like and it sounds like Hannah will be cared for well by him and his team. Love, Sarita
Oh Candy, i haven't been on much & i had no idea all of this was going on. I am so sorry! I hope they can come up with some definitive answers soon. Hannah will definitely be in my prayers!
LOve you guys! I'll be thinking of you. *hug*
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