Becky, a very good friend of mine, recently approached me about doing a Homemade Gourmet fundraiser in Hannah's Honor. She has generously offered to donate ALL of her profits to FARA, the Friedreich's Ataxia Research Alliance.
Please join us in raising money to find a cure for FA!!The online fundraiser will end on Sept 22nd. Please visit this site to place your order. http://homemadegourmet.eventuity.com/e/25311
Big Thanks!!
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Lots of exciting advancements are being made. We need the money to push the research through FDA approval. One of the most exciting avenues being pursued is the HDAC Inhibitor. It is showing great promise in the animal models and blood from FA patients. The HDAC Inhibitor introduces the missing frataxin back into the gene. It has the potential of not only stopping the progression of FA, but reversing the damage already done.
Friday, September 11, 2009
FA Fundraiser in Hannah's Honor
Posted by Candy at 7:09 AM
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Hi my name is Kris Shaughnessy and I am the Manager of Community Affairs for the Trisomy 18 Foundation. I am not sure if you are aware or not but we have a chance of winning a Million dollars from the Chase/Facebook giving campaign. I was wondering if you would mind posting the following on your blog? If you would we would greatly appreciate it!! If you have any questions please contact me at: info@trisomy18.org
Thank you so much!
Please Post:
For all the children who have graced our lives, living or remembered . . . let's change the future of Trisomy 18 research into treatments for them! Be their voice in the world. Watch this video. Vote yourself. And share widely with others! http://tinyurl.com/T18video
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