The phone rings at 12:15am and....

it's Hannah's neurologist. Holy Smokes!! First of all, I about jumped out of my skin and when I saw that it was a local number I thought that it was a wrong number......but, I answered anyway. IT WAS HANNAH'S NEUROLOGIST at 12:15am!!!!

I spent hours on the phone yesterday afternoon finding out that the only lab in the country that runs the Freidreich's Ataxia test is Athena AND they are (of course) out of network. The neuro's office is filing for a predetermination with UHC which could take up to 30 days. THAT IS NOT ACCEPTABLE!!!

So......I called to find out that we have out-of-network coverage with a $800 deductible + 40%. Fine, ok.....we'll pay it. We have to have some answers.

Well.....Dr G is out of town with his Mom that just had bypass surgery. He was checking in with his office and wanted to make sure that we knew "in the world of managed care that if the ins cannot provide you with a name of someone that runs a particular test (which won't happen since Athena has this test patented) that they must honor it as in-network." He told me to sit tight, "that I know you want this done ASAP", but that we'll get coverage. Well.....I can't sit tight.

Jason is supposed to pick up the labwork prescription today. There are probably 15 different tests scheduled for Hannah, but only one with Athena. The rest are with LabCorp.